2022 Milestones National Autism Conference
Milestones Autism Resources
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Warrensville Heights, OH 44128
Phone: (216) 464-7600
The resources and information in the Milestones Autism Resources Center are meant to be a reference, and should not be considered comprehensive or an endorsement or recommendation of any providers, methodologies or services from any of the groups, agencies or companies listed. We urge you to make independent judgment when selecting a professional to assist you. We provide guiding questions to help you think through what is right for your situation.
Person: Sharon Cohen
This is a NIH funded study recruiting parents caring for children dependent on medical technology at home.
Daily use (by child) of one of more of the following: feeding tubes (J tube, G, tube, NG tube), IV infusion of parenteral nutrition or medication, oxygen, tracheostomy tube or mechanical ventilator, CPAP, BiPAP.
Parent (biological, adoptive, foster or grandparent) cares for the technology-dependent child at home and is able to speak, write and understand English.
Child using technology must be under 17 years old.
Study Goal: To explore methods that can be used by parents caring for technology dependent children to reduce stress.
Study Details: Each participant receives 5 virtual visits using a secure HIPPA approved platform over a 9 month period and completes a series of surveys at each visit. Participants are compensated for participation at each study visit.
***All information gathered will be kept confidential and encrypted in their HIPAA-compliant data collection database.***
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